My name is Skylar and I’m fighting everyday just to move.
I have pancreatitis; a very painful condition where your body goes into unbelievable pain every time you eat or drink – my body does not break down food. At the age of 12 I was diagnosed with type 1 diabetes. This complicates things because every time I have a pancreatitis attack it messes up my sugar and sends me into DKA diabetic keto acidosis causing my organs to send acid out into my body and causing my body to get dehydrated and struggle to breath. It often puts me in ICU about 4 times a month.
My struggle each day to get up and function would be impossible without my husband and family behind me. My mother has been blessed with a wonderful job that lets her take me to all my doctors appointments. Each month we have many trips to Winston a two hour drive from our house to meet with several specialist who are working to help me get a transplant. This opportunity to get a transplant is my chance my hope and my dream for a life I could live and not just struggle through.
I wanted to share my story to bring awareness to this condition pancreatitis attacks can be caused by drinking if it happens only once or twice but in cases such as mine it is a disease I was born with. I’ve been mistreated and accused of doing this to myself because this disease is so rare. Everyday I take close to 13 medications just to help the pain and control this enough to get out of bed. My life has changed so much in the past year I’m no longer allowed to work drive or go to school because I have weeks where I can’t function enough to go to the rest room without help. I have had 2 feeding tubes that I had to have at home because my pancreatitis was causing such bad pain I could not even stand to drink water.
With all this going on my amazing parents and husband have been carrying a huge weight by my medical bills and trying to get off work to take me to the hospital the doctors and just take care of me. I want people to realize the struggle families go through – I can’t imagine how they feel knowing they can’t take away my pain or figure out how to pay to keep me alive.
[I like to encourage others to] thank the Lord for the healthy people in your life because you never really appreciate it until your faced with [something like this.] [Sometimes I’m just] stuck because I’m to tired or in too much pain to go to the store or even just to see family. [But even in the middle of it] Im thankful because at the age of 20 I see the beauty in small things it takes most a lifetime to appreciate.