My mom Lisa is my fighter.
She has a horribly debilitating disease called Scleroderma. Scleroderma is an auto immune disease that turns your body against itself. There are two different types of Scleroderma, limited and diffused. Limited scleroderma attacks the body’s skin. It mainly affects the hands, arms and face. What this disease does is causes tightening in the skin. Tightening to the point that the hands start to close because of it. It also causes painful ulcers mainly on the knuckles and tips of the fingers. (My mom gets them on her back sometimes). These ulcers push out calcium deposits that cause utter pain to patients.
Limited scleroderma patients usually live a normal life span but a life of pain and suffering. Diffused scleroderma has all the same symptoms as Limited. However, this type also attacks the organs of your body. It hardens the Lungs, the kidneys, the heart, and attacks the esophagus rapidly. It basically turns the body to stone from the inside out. The usual lifespan of a Diffused patient is 5 years.
This is the type my mother has.
In 1999 she was diagnosed with Diffused Scleroderma. Her doctor who is the only Scleroderma Specialist in the State of Colorado told her she wouldn’t make it past 5 years with this type. Well my mom beat the odds. But this year the disease has taken a toll on her. April 10, 2014 my mom was rushed to the hospital because she had not been able to eat for 9 days because she couldn’t keep anything down (a common symptom and reason of death in Scleroderma patients, they basically starve to death). During her hospital stay doctors then told her she would not make it past the weekend. Well once again my Mom beat the odds.
Though it was the hardest thing I have ever had to see watching my mom so close to death as if she was on her death bed, I always told myself, walk by faith not by sight. Today she has been able to eat and is doing much better. At the time of her diagnosis there was no known cure or procedure to neither stop this disease in its tracks or reverse it. As of today there still is no cure for this disease however, a doctor at NW University in Chicago has been doing stem cell transplants to stop the disease from progressing. We are currently in the process of raising funds to pay for this transplant because her insurance will not pay for it. I thank you for listening to my mother’s story.
For more information on her story you can watch this video.
To donate to Lisa’s family, click here.