My name is Ali and I am 18 years old. When I was born I was diagnosed with Multiple Pterygium Syndrome, which causes multiple medical issues including mainly webbing of the bend of the elbows, back of the knees, neck, fingers, and arm pits. I was also born with a diaphragmatic hernia and cleft palate, which were both repaired soon after I was born, and congenital scoliosis, which has required 4 back surgeries to prevent my curvature from becoming life threatening (2 of which required insertion of 2 titanium rods along either side of my spine). In total, I’ve had 15 surgeries in my lifetime.
The scariest part of this condition is that it is very rare (occurring in only one in ten thousand) and if severe can be very very life threatening causing severe respiratory problems. The doctors had told my parents that they gave me until the age of five and then after that they didn’t know if I would survive, and if I did survive I would never walk. But God had different plans for me.
Today I am a perfectly healthy 18 year old who will be going into her senior year of high school this fall. I’m a gold medal Junior Olympic baton twirler and am a majorette for my school’s marching band. I hope to attend Baylor University to become a pediatric psychiatrist.
Because of our miracle working God, I am here today, able to tell my story and hopefully show people that as long as you have total trust and faith in the Lord, you can tackle any obstacle that gets thrown at you.